I attended ExL Pharma's ePatient Connections conference (#ePatCon on Twitter) in Philadelphia this past Thursday and met a few interesting people. Although some pundits doubt the usefulness of these conferences, it's always good to get out of the box of your office and talk to people - you might learn something. Let me share what I learned.
A majority of the ePatients attending were presenters sponsored by my friends at WEGO Health who paid their expenses. WEGO Health funds its support for its Health Activist community through transparent, community-vetted advertising and sponsorships from health companies: research, content development, education, events, conferences, distribution programs, ad networks and more.
Every ePatient I spoke to at the conference wants a pharmaceutical company to hire him or her. As one person told me, "I want to turn my avocation into a vocation." That person has a Twitter account (@tvsoccerdad) with less than a thousand followers. Other ePatients boast of having a few thousand followers on Twitter. But it's their experience and passion that really qualifies them as paid consultants to pharma.
Indeed, many ePatient tweeters and bloggers are being paid by pharma. One example is the German MS patient blogger/journalist I wrote about some time ago who contributes articles to "Living Like You," a Novartis Pharma AG website. The problem is, most of the time these ePatients do not reveal the nature of their relationship with pharma (read "Transparency is Good in Theory, But Not in Practice").
What other ways can ePatients work with pharma?
Read more »
Saturday, 31 October 2015
Thursday, 29 October 2015
The Bayer Healthcare Grants4Apps® Team Receives the 6th Annual Pharmaguy SoMobile Pioneer Award!
For immediate release:
Philadelphia, PA, October 29, 2015: Today, at the ePatient Connections conference, Pharmaguy presented the 6th Annual Pharmaguy™ SoMobile Pioneer Award to Bayer HealthCare Grants4Apps (#G4A) team.
Team Members Include:
What is the Pharmaguy SoMobile Pioneer Award?
Read more »
Philadelphia, PA, October 29, 2015: Today, at the ePatient Connections conference, Pharmaguy presented the 6th Annual Pharmaguy™ SoMobile Pioneer Award to Bayer HealthCare Grants4Apps (#G4A) team.
Team Members Include:
- Esther-Kristin Lather, Program Manager (left in photo)
- Jesus del Valle, Head of Grants4Apps (center in photo)
- Mathilde Saingeon, Match Maker (right in photo)
- Jannis Busch, Operations (not shown)
What is the Pharmaguy SoMobile Pioneer Award?
Read more »
Journalists & Physicians Use Superlatives, Some Supplied by FDA - e.g., "Breakthrough" - to Describe Unapproved Cancer Drugs
The use of superlatives to describe cancer drugs in news articles as “breakthrough,” “revolutionary,” “miracle” or in other grandiose terms was common even when drugs were not yet approved, had no clinical data or not yet shown overall survival benefits, according to an article published online by JAMA Oncology (JAMA Oncol. Published online October 29, 2015).
The authors searched for 10 superlatives (breakthrough, game changer, miracle, cure, home run, revolutionary, transformative, life saver, groundbreaking and marvel) in conjunction with the term “cancer drug” in a Google news search earlier this year between June 21 and June 25. The authors found 94 articles from 66 news outlets with 97 superlative mentions meeting the study criteria and referring to 36 specific drugs. Half of the drugs described had not yet received approval from the U.S. Food and Drug Administration for at least one indication.
Most of the 97 superlatives were used by journalists (55 percent); physicians (27 percent); industry experts (9 percent); patients (8 percent) and one member of Congress (1 percent). In 55 percent of the cases, the superlative was used by the author of the article without any other attribution.
Where do these journalists and physicians get their information about investigational drugs; i.e., drugs that have not yet been approved by the FDA?
Read more »
The authors searched for 10 superlatives (breakthrough, game changer, miracle, cure, home run, revolutionary, transformative, life saver, groundbreaking and marvel) in conjunction with the term “cancer drug” in a Google news search earlier this year between June 21 and June 25. The authors found 94 articles from 66 news outlets with 97 superlative mentions meeting the study criteria and referring to 36 specific drugs. Half of the drugs described had not yet received approval from the U.S. Food and Drug Administration for at least one indication.
Most of the 97 superlatives were used by journalists (55 percent); physicians (27 percent); industry experts (9 percent); patients (8 percent) and one member of Congress (1 percent). In 55 percent of the cases, the superlative was used by the author of the article without any other attribution.
Where do these journalists and physicians get their information about investigational drugs; i.e., drugs that have not yet been approved by the FDA?
Read more »
Wednesday, 28 October 2015
Amgen Wants to Own Your Protected Health Information in Exchange for Copay Card
Amgen is the Rumpelstiltskin of the drug industry.
As reported by MedPage Today/CardioBrief, "Doctors, pharmacists, patients and others are now starting to learn that in order to receive financial assistance from Amgen for its expensive new cholesterol drug Repatha, patients are being required to surrender rights to their personal information, including their personal health information."
Not even HIPAA-protected health information is off limits.
"The agreement specifically states that by agreeing to the terms [of Amgen's privacy policy] patients may lose federal HIPAA protection," notes CardioBrief.
Patients must agree that they "understand that Amgen may use [their] personal information, including [their] personal health information, for 10 years once [they] accept this Authorization ..."
What other nasty things must poor people agree to in order to get a copay card?
Read more »
As reported by MedPage Today/CardioBrief, "Doctors, pharmacists, patients and others are now starting to learn that in order to receive financial assistance from Amgen for its expensive new cholesterol drug Repatha, patients are being required to surrender rights to their personal information, including their personal health information."
Not even HIPAA-protected health information is off limits.
"The agreement specifically states that by agreeing to the terms [of Amgen's privacy policy] patients may lose federal HIPAA protection," notes CardioBrief.
Patients must agree that they "understand that Amgen may use [their] personal information, including [their] personal health information, for 10 years once [they] accept this Authorization ..."
What other nasty things must poor people agree to in order to get a copay card?
Read more »
Monday, 19 October 2015
5 Reasons Why I Follow Martin Shkreli on Twitter
Martin Shkreli, CEO of Turing Pharmaceutical, has been called "the most hated man on the Internet" after he raised the price of a generic AIDS and cancer drug by exploiting a few FDA loopholes (see here).
Despite that, there are at least 5 reasons why I chose to follow him on Twitter.
#1: He Has a REAL Enigma Machine!
I always wanted one of these and I'm jealous that Mr. Shkreli has one. What pharma CEO would also not like to have an Enigma machine?
But the real Enigma is Shkreli himself! He recently tweeted: "New Enigma machine for our office. Perhaps it will help us crack the code in drug development."
Code? What code? We don' need no stinking' code! Unless the "code" is buy a cheap generic drug and exploit loopholes to jack up the price.
He tweeted the photo shown here as proof that he has the machine as well as some other junk he may or may not be using to help crack the drug development "code."
That's just a "wow" reason. Here are some other more important reasons why I chose to follow Shkreli on Twitter.
Read more »
Despite that, there are at least 5 reasons why I chose to follow him on Twitter.
#1: He Has a REAL Enigma Machine!
I always wanted one of these and I'm jealous that Mr. Shkreli has one. What pharma CEO would also not like to have an Enigma machine?
But the real Enigma is Shkreli himself! He recently tweeted: "New Enigma machine for our office. Perhaps it will help us crack the code in drug development."
Code? What code? We don' need no stinking' code! Unless the "code" is buy a cheap generic drug and exploit loopholes to jack up the price.
He tweeted the photo shown here as proof that he has the machine as well as some other junk he may or may not be using to help crack the drug development "code."
That's just a "wow" reason. Here are some other more important reasons why I chose to follow Shkreli on Twitter.
Read more »
Baleno : Premium play using a phased-out brand?
Brand: Baleno
Company: Maruti Suzuki
Brand Analysis count: # 560
Interestingly, Baleno was MSL's foray into the premium sedan segment, 16 years ago. Baleno was first launched in 1999. Although the car was exceptional in terms of quality, MSL priced the product exorbitantly high. In 1999, the brand was priced at 8 lakhs. This along with the general VFM perception of Maruti brand caused a lukewarm response to Baleno. Later Baleno reduced the price substantially to around Rs 5.5 lakhs. Despite these efforts, Baleno failed to deliver volumes resulting in its withdrawal in 2006. It is said that the quality of the product is evident in the fact that Baleno is still used as a racing car in India.
On the branding front, I consider the Baleno branding as a big mistake. Baleno hatchback would be a successful product probably as a VFM product and I doubt whether it would be a premium brand as wished by MSL.
Company: Maruti Suzuki
Brand Analysis count: # 560
Maruti Suzuki Ltd ( MSL) is in the process of foraying into the premium hatchback ( B+) segment with the launch of Baleno. The announcement was surprising to me since the company which is struggling to break into the premium segment has chosen to name the product with a phased out brand!

It is in this context that the launch of the new Baleno hatchback becomes interesting. MSL has stated that it aims to break into the premium segment of the Indian automotive market. The company had created a premium distribution network branded as Nexa. The company had launched its premium crossover S-Cross through Nexa.
Everyone knows that MSL has the issue of being perceived as a value-for-money brand. Many experts suggest that more than the VFM perception, the brand Maruti have an issue with the design. So far no product from MSL was having a premium design.
When the company has such a perception problem existing, why would it launch a " premium" car with a brand which was phased out? Frankly I don't see any logic or rationale behind that move. Baleno, in my personal view, doesn't have a lasting equity which could help in the new product launch. Further, the new product is a hatchback and not a sedan.
So what is the value that the old brand Baleno is bringing to the new product is puzzling. Baleno is also a product which failed due to its high ( premium) pricing. Now MSL is launching a high-priced hatchback in that same name is nothing but an irony. The only logic I see is that the Baleno hatchback is a global product and hence the brand.
In my opinion, MSL has lost an opportunity to build a premium brand. By launching Nexa, the company wanted to create a separate identity away from old Maruti products. When the company has invested so much in creating a different identity, why would it bring back a brand which has the baggage of history?
Premium-ness comes from exclusivity, stellar performance and brand equity. I wonder how could anyone relate premium-ness to a brand which was phased out because it was not successful?On the branding front, I consider the Baleno branding as a big mistake. Baleno hatchback would be a successful product probably as a VFM product and I doubt whether it would be a premium brand as wished by MSL.
Friday, 16 October 2015
Meme: "Yer talkin' Pish," Says Pfizer Chief Bean Counter Ian Read
In a Forbes interview, Pfizer's CEO (an accountant, born in Scotland no less) was quoted as saying to employees: “I’m not going to talk about mission or vision. We’ve got to talk about imperatives.” Namely, cutting costs and pleasing shareholders.
He also said some other interesting things.
Read more »
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